Friday 2 December 2016

Celebrating 10 years of Dementia with Lewy Bodies research

An event was held in Newcastle to celebrate 10 years of Dementia with Lewy Bodies research with the Lewy Body Society

The event involved participation from researchers, clinicians and champions from;

  • The NIHR Newcastle Biomedical Research Centre
  • Newcastle University
  • The Lewy Body Society
  • UCL
  • University of Southampton

who provided an update on Dementia with Lewy Bodies research, as well as celebrating the excellent work that the Lewy Body Society has been doing for the past ten years.

Dr Lynne Corner, Director of Engagement with the NIHR Newcastle Biomedical Research Centre opened the event. She was followed by Professor Ian McKeith, Professor of Old Age Psychiatry at Newcastle University and Lead for the Ageing Brain theme with NIHR Newcastle Biomedical Research Centre.

Colleagues Dr Jay Amin (University of Southampton) and Dr Jose Bras, (UCL Institute of Neurology) then gave updates on their work on dementia with Lewy Bodies.

Following a short refreshment and networking break, Ashley Bayston, Chair of Trustees for the Lewy Body Society addressed the audience, speaking about the organisation and the achievements over the past ten years.  This was followed by a panel discussion which addressed some of the main challenges of Dementia with Lewy Bodies.

In the afternoon session, Conor McGinn MP, Labour MP for St Helen’s North and Ambassador for the Lewy Body Society spoke about his knowledge of Dementia with Lewy Bodies and his aim to make research into the condition a priority.

Claire Bamford, Senior Research Associate working on the Diamond-Lewy Research Programme at Newcastle University, along with lay member of the group, Derek Forster, discussed the importance and value of patient and public involvement in research studies of this kind.

Sandra McDonald from Office of the Public Guardian, Scotland, discussed the ‘legal labyrinth’ surrounding diminished capacity and how the service can protect the affairs of adults who lack the capacity to do this themselves.

Finally, Professor John O’Brien, Professor of Old Age Psychiatry, Newcastle University spoke about the future of research into Lewy Body Dementia and what this may look like.

The event then closed with a summary from Dr Lynne Corner and Professor Ian McKeith.

Dementia with Lewy Bodies research is something that the NIHR Newcastle Biomedical Research Centre is fully committed to. Not only do they support research into dementia in general through the Ageing Brain theme, but they support dedicated work into alternative strands of the condition with a specialist NIHR Newcastle Biomedical Research Unit in Lewy Body Dementia.

The NIHR also support a range of activities focused on a better understanding of the origins, prevention and treatment of the condition. The NIHR Clinical Research Facility in Newcastle hosts a number of clinics onsite at Newcastle University’s Campus for Ageing and Vitality. These clinics are specifically designed to set up and deliver all phases of clinical trials for a range of medical research projects, of which neurosciences is a key area.