Monday 12 December 2016

Volunteers needed for dementia study

Alison Killen, Research Assistant working on dementia research at Newcastle University is looking for volunteers to join a study, supported by the Lewy Body Society.


There is a lot of work ongoing to develop tests and treatments which will help people with Dementia with Lewy Bodies in the future, but it is also vital to provide effective support and information for people living with the condition and their families at the present time.

Alison’s study, which is being supported by the Lewy Body Society, aims to develop short-term groups which are different from existing dementia support groups because they will include tailored knowledge, skills and coping strategies all related to Dementia with Lewy Bodies.

By running these groups, she hopes to find out three things:

  • Whether attending makes people feel more in control and able to manage
  • Whether taking part affects feelings of stress and low mood.
  • What is the most effective group format and content

From here she plans to develop a manual and training workshop based on findings. The manual will be available for clinical staff who can deliver this package soon after people receive a diagnosis.

Take part

Recruitment for the study will begin in April and people will be offered information about joining during clinic appointments. For now Alison is looking for a small number of volunteers who are living with Dementia with Lewy Bodies or, caregivers who care for people living with the condition to join her patient and public involvement (PPI) panel.

If you would like to find out more information about this, please contact Heather Dowey, Research Support Secretary on (0191) 208 1341 or email

Newcastle University, in partnership with the Newcastle upon Tyne Hospital NHS Foundation Trust is committed to working with the public and patients in order to conduct valuable medical research.

Dementia with Lewy Bodies is an area that is given dedicated focus within the NIHR Newcastle Biomedical Research Centre’s portfolio through a specific NIHR Newcastle Biomedical Research Unit in Dementia with Lewy Bodies. With this remit, clinical academic staff across Newcastle University and Newcastle Hospitals are committed to improving the prevention, diagnosis and treatment of long-term conditions and common diseases affecting the older person.