Skip to content
Newcastle Biomedical Research Centre
  • About
    • Our Vision and Strategy
      • Equality, Diversity and Inclusion
    • Our Governance
    • Our People
      • Leadership Team
      • Research Theme Leads
      • Public Partnership Advisory Group (PPAG)
      • Cross-Cutting Area Leads
      • Core Theme
      • Trainees
    • Our Partnership
    • Our Region
    • Acknowledgement and Branding
  • Our Research
    • Ageing, Sarcopenia and Multimorbidity
      • The Theme
      • Team
      • Impact
      • News and Events
    • Dementia, Mental Health and Neurodegeneration
      • The Theme
      • Team
      • Impact
      • News and Events
      • Lewy Body Dementia Doctoral Training Network
    • Digital Health, Ageing Innovation and Inclusion
      • The Theme
      • Team
      • Impact
      • News and Events
      • Patient and Public Involvement and Engagement
    • Informatics and Precision Care for an Ageing Population
      • The Theme
      • Team
      • Impact
      • News and Events
    • Liver Disease, Multimorbidity and Lifestyle
      • The Theme
      • Team
      • Impact
      • News and Events
    • Musculoskeletal Disease and Inflammation Medicine
      • The Theme
      • Team
      • Impact
      • News and Events
      • PIMS
    • Neuromuscular Disease, Rare Diseases and Mitochondrial Dysfunction
      • The Theme
      • Team
      • Impact
      • News and Events
    • Skin Disease, Oral Disease and Immunogenomics
      • The Theme
      • Team
      • Impact
      • News and Events
  • Patient & Public Involvement
    • Get Involved in Research
    • Public Partnership Advisory Group
    • PPIE Resources for Researchers
  • Industry & Partners
  • Training & Professional Development
    • Our Research Training
    • Resource Hub
    • Opportunities
  • Our Impact
  • News and Events
  • Contact
Back to top Go to content
Newcastle Biomedical Research Centre Logo
  • About
    • Our Vision and Strategy
    • Our Governance
    • Our People
    • Our Partnership
    • Our Region
    • Acknowledgement and Branding
  • Our Research
    • Ageing, Sarcopenia and Multimorbidity
    • Dementia, Mental Health and Neurodegeneration
    • Digital Health, Ageing Innovation and Inclusion
    • Informatics and Precision Care for an Ageing Population
    • Liver Disease, Multimorbidity and Lifestyle
    • Musculoskeletal Disease and Inflammation Medicine
    • Neuromuscular Disease, Rare Diseases and Mitochondrial Dysfunction
    • Skin Disease, Oral Disease and Immunogenomics
  • Patient & Public Involvement
    • Get Involved in Research
    • Public Partnership Advisory Group
    • PPIE Resources for Researchers
  • Industry & Partners
  • Training & Professional Development
    • Our Research Training
    • Resource Hub
    • Opportunities
  • Our Impact
  • News and Events
  • Contact

Digital Health, Ageing Innovation
and Inclusion

  1. Our Research
  2. Digital Health, Ageing Innovation and Inclusion
  3. Patient and Public Involvement and Engagement

Patient and Public Involvement and Engagement in Digital Health, Ageing Innovation and Inclusion

Patient and Public Involvement and Engagement (PPIE) is central to the Digital Health theme. We work in close partnership with people living with long-term conditions, their carers, and the wider public to ensure our research reflects real-world priorities and needs. 

We actively involve individuals across the life cycle of our research—from identifying relevant research questions to designing, delivering, and disseminating our work. Our digital health studies prioritise co-design approaches, ensuring that technologies are usable, accessible, and acceptable to diverse populations, including those who may be digitally excluded. 

Our commitment to inclusive involvement means we work with PPIE contributors who bring lived experience of ageing, multimorbidity, and frailty, and we tailor our engagement methods to support meaningful contribution—whether through advisory panels, workshops, or one-to-one involvement. 

By embedding PPIE at the heart of the Digital Health theme, we aim to co-produce innovative, acceptable, and impactful digital health solutions that support healthier ageing and reduce health inequalities. 

Examples of our Public Patient Involvement Work 

 

Mobilise-D Lessons Learned from Public Patient Engagement

The work presented in the webinar has been conducted under the Mobilise-D project and is funded by the Innovative Medicines Initiative 2 Joint Undertaking (JU) under grant agreement No. 820820. This JU receives support from the European Union's Horizon 2020 research and innovation program and the European Federation of Pharmaceutical Industries and Associations (EFPIA).

Impact of Public Patient Involvement

 

Mobilise-D Data Journey

Explore the fascinating path of patient data within Mobilise-D in this video crafted with Nifty Fox Creations, as we unveil the journey your data takes from collection to analysis. Discover the impact of your participation in our research study, and understand how your data is utilized responsibly to drive innovation in healthcare.

Resources

The Digital Health Public and Patient Advisory Group is a key part of the Digital Health Theme’s aim to make digital health research more patient and public-driven. We bring together people with lived experience of health conditions, alongside carers, healthcare professionals, and community voices to shape digital innovation in healthcare. 

Whatever the purpose, our group plays a central role in making digital health technology more inclusive, relevant, and impactful by actively contributing to the research carried out here at the BRC.  

If you wish to work with the Digital Health Public and Patient Advisory Group, please email Megan Hanrahan at This email address is being protected from spambots. You need JavaScript enabled to view it. 

Our Theme members have contributed to various guidelines to support the conduct of optimal public patient involvement practices in digital health and inclusive research. All guidelines have been co-produced with Public Patient Contributors.

  • Mobilizing Patient and Public Involvement in the Development of Real-World Digital Technology Solutions: Tutorial

    Mobilizing Patient and Public Involvement in the Development of Real-World Digital Technology Solutions: Tutorial

    Authors:
    Alison Keogh, Ríona Mc Ardle, Mara Gabriela Diaconu, Nadir Ammour, Valdo Arnera, Federica Balzani, Gavin Brittain, Ellen Buckley, Sara Buttery, Alma Cantu, Solange Corriol-Rohou, Laura Delgado-Ortiz, Jacques Duysens, Tom Forman-Hardy, Tova Gur-Arieh, Dominique Hamerlijnck, John Linnell, Letizia Leocani, Tom McQuillan, Isabel Neatrour, Ashley Polhemus, Werner Remmele, Isabel Saraiva, Kirsty Scott, Norman Sutton, Koen van den Brande, Beatrix Vereijken, Martin Wohlrab, , Lynn Rochester, Mobilise-D consortium23

    Read the paper 

  • How Can Patients Shape Digital Medicine? A Rapid Review of Patient and Public Involvement and Engagement in the Development of Digital Health Technologies for Neurological Conditions

    How Can Patients Shape Digital Medicine? A Rapid Review of Patient and Public Involvement and Engagement in the Development of Digital Health Technologies for Neurological Conditions

    Authors:
    Megan Hanrahan, Cameron Wilson, Alison Keogh, Sandra Barker, Lynn Rochester, Katie Brittain, Jack Lumsdon, Ríona McArdle

     

    Read the paper

  • Public and Participant Involvement as a Pathway to Inclusive Dementia Research

    Public and Participant Involvement as a Pathway to Inclusive Dementia Research

    Authors:

    Sarah Walter, RÍona McArdle, Emily A. Largent, Rebecca Edelmayer, Claire Sexton, Sandra Loyola Sandoval, Helen Medsger, Nancy Meserve, Roland Samaroo, Cynthia Sierra, Marlon M. P. Smeitink, Allison Gibson, Sarah Gregory, Diana Karamacoska, Iracema Leroi, Doris Molina-Henry, Aida Suarez-Gonzalez, Crystal M. Glover

    Read the paper

 

More about the Theme

  • The Theme
  • Team
  • Impact
  • News and Events
  • Patient and Public Involvement and Engagement

Useful Links

Contact us

Our Impact

Acknowledgement

Accessibility Statement

Newcastle Biomedical Research Centre Logo in White

NIHR Newcastle Biomedical Research Centre
Biomedical Research Building
Campus for Ageing and Vitality
Newcastle upon Tyne
NE4 5PL
United Kingdom

Email: Newcastle.BRC@newcastle.ac.uk

Tel: +44(0)1912081148

The NIHR Newcastle Biomedical Research Centre (BRC) is part of the NIHR and hosted by The Newcastle upon Tyne Hospitals NHS Foundation Trust and Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust in partnership with Newcastle University.

Newcastle upon Tyne Hospitals NHS Foundation Trust logo

Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust logo

Newcastle University Logo

Newcastle upon Tyne Hospitals NHS Foundation Trust logo

Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust logo

Newcastle University Logo

Privacy Policy

Cookie Policy

Website by Volute

Icon: This website is powered by 100% renewable energy
Icon: Click here to find out more
Cookies user preferences
We use cookies to ensure you to get the best experience on our website. If you decline the use of cookies, this website may not function as expected.
Accept all
Decline all
Read more
Analytics
Tools used to analyse the data to measure the effectiveness of a website and to understand how it works.
Google Analytics
Accept
Decline
Save preferences